Saturday, September 5, 2009

Roller Coaster Ride

Sooner or later this roller coaster is going to stop, but as of right now we don't know where or when. 

We are trying to get in to receive the high dose IL2 drug treatment.  This treatment  requires that I spend a week in the ICU to receive the dosages.  Both MD Anderson (MDACC) and Huntsman Cancer (HCI) can provide the treatment, but there are some variables we are trying to determine before resolve where and when we start the treatment.  Right now we are trying to find out if we can start the treatment at MDACC possibly Wednesday the 9th of September or HCI on the 13th of September.  We won't know if we can get into MDACC until Tuesday when everybody returns from the Labor Day weekend.  And even the HCI 13th date has some maybes that we won't be able to resolve until later next week.  So based on our track record this will change three more times between now and when we actually start treatment, but I think we are slowly closing in. 


Anne said...

Ugh. How frustrating.

RLRP said...

I'm sorry that this has been frustrating! I'm sure you're anxious to get some treatment going. We'll be watching for more updates. Thanks for keeping us posted!

Diane said...

Thanks for keeping us all posted. We're sorry you have wait!! You continue to be in our thoughts & prayers. Xo-Ryan & Diane

Anonymous said...

Hello Ben! I am Holly and Clark Chamberlain's sister. My husband went through exactly what you are going through right now. He was diagnosed exactly 2 years prior to your July diagnosis. As his constant companion, caregiver and "team leader", I learned volumes about melanoma and what docs can help here in SLC. I'm here for your family in any capacity, if only just to talk or be a shoulder to cry on. I truly empathize with you and your family. Please contact me when you feel up to it.
Be strong and do not lose faith. You must beat this! We're Killing Cancer! -Tammy Martin